Sunday, August 14, 2011

Hopefully headed home soon

So this weekend seemed to fly by I actually did alot of sleeping and so did Chris. Although I did make it to Bingo at the observation deck here at MD Anderson I hit Bingo twice and now am the proud owner of 10 dollars worth of credit at the gift shop. What shall I buy? hmmm I will use it tomorrow as the gift certificate expires tomorrow. My friend Connie from home came by and visited me today so that was a nice visit. It gets lonely here at the hospital after a while when I don't have visitors and Chris is sleeping off the medications but the Internet helps as I always say " All my friends live in my computer" which is a little sad in a way but its better than having all my friends live in my head! ha! Anyways Chris is doing really well compared to the last two treatments, minimal swelling and pain. He is still really red and tired and I don't believe he has had a bite to eat since last Tuesday but I have seen him alot worse. Although He does have a bad stomach ache  and it doesn't seem to be going away even with medication. Poor thing :(
I can't believe the summer is almost over!  I am especially sad my mom has had to cancel our vacation in Florida for the end of the month. I had been dreaming of white beaches and clear water all year. Oh well guess I will have to wait until next year when Chris is allllllll better!!! ;)

Friday, August 12, 2011

Morning Scare

So today was a little nerve wracking Chris's blood pressure which normally starts running low at the end of treatment starting running pretty low this morning 78/48 and he was running a temp. So they took cultures from his PIC line and took a urine sample to make sure it wasn't suffering from any kind of infection. Which could be possible seeing that his PIC line was clogged all week and I wasn't able to flush it and when he is fell a couple of weeks ago there was a possibility for an infection BUT he has been on antibiotics so hopefully its nothing to worry about. His blood pressure did go up and his fever broke so he seems to be OK for now. I just don't want anything to hinder him from finishing his treatments. He will have 3 more to go after this cycle. Then we hope that the tumors will be gone and we will have a walking miracle! :)   I know I have probably mentioned this before but only 15% of people actually respond to the BioChemotherapy and I just think its so Awesome he finally had a lucky break for once! Anyways that's the news for today. Love you guys and thank you as always for all the love and prayers
xoxoxoxoxo

k



Ack! Look at whats all going in my Babies Veins let alone all the medicine in pill form and his shots of Interferon!


Thursday, August 11, 2011

CT Scan Images

Ok well these images aren't as pretty as the MRI and Xray photos but they get the point across!

Sinus Tumor, If you notice in the before picture you do not see any white area but in the after you do that is the bone you are now seeing and not tumor!

Before CT scan of sinus




After CT Scan of Sinus




Before CT scan of Lung






After CT Scan of Lung





When  Dr. Hwu came in this morning she expressed her excitement and the other Doctors excitement at their morning meeting that Chris is responding the BioChemotherapy so well. I am so happy everyone I just  know it will continue to shrink and he will continue to heal!

xo

k

p.s. I am working on a Melanoma website to get a little more awareness out there, please check it out, its still under construction but if you would like to add a link or your blog or have a suvivor story please contact me there at the website http://www.curemelanoma.info/

Wednesday, August 10, 2011

The BioChemotherapy is Working!!!

We got great news today and well I just wanna shout it from the roof top.. ALL OF CHRIS'S TUMORS ARE SHRINKING!!!!!!!!!!!!!!!!!!  What a BLESSING!!!  Well we knew his lung tumor had shrunk from being able to see his chest x-rays the last treatment but we were told today it had shrunk an incredible 50% more!  The best news though is that his sinus tumor is shrinking but we are not sure how much yet it did not say on the report but I think they want to do an MRI  before telling us anymore because it will give a better view of what is going on. Also all the tumors that were in his subcutaneous skin layer are all gone!  Anyways I am so excited and happy!  Thank you all so much for the prayers.  I will keep everyone updated while we are here as usual just pray for Chris while he undergoes his BioChemotherapy because its so rough on him.
Love you all so much

xo
k

Tuesday, August 9, 2011

Short Day, Short Blog

Well today we got to the hospital around 6am and we were out by 8am !  They rescheduled the appointment for his chest scan at 11:20 to around 7  this morning so that was fantastic. Chris even drove to MD Anderson this Morning, so that absolutely made my day!  We don't have to go to the hospital until 2:30 pm tomorrow so that will give us plenty of time to catch up on our sleep because you can't get too many zzz's  at the hospital. I am so anxious to know his test results. Pray your hardest tonight folks because we shall soon find out  how well this BioChemotherapy is working , better yet lets just pray for it to be completely gone!! :D

xo
k


I am hopeful for Chris!

Monday, August 8, 2011

Tests and Getting Ready for Round 3 ding ding ding!

So our weekend was nice, lots of visits and nice energy. Chris's sister officially shaved his head and my mom removed Chris's stitches from his chin. Chris regained most of his strength and his appetite. I even got a day to myself , I went to the movies with my mom and sister to watch The Rise of the Planet of the Apes ! Oh and then the best thing happened!!! I was applauded and highfived by a group of children at the movie theater arcade when I managed to wrangle 2 Stuffed animals at once while I attempted the claw game! Ha! Needless to say I was giddy, I needed some applause!

My mom removing Chris's stitches

Ouchie


New Haircut

Well.. today started WAY too early at about 2:30 am we woke up to get ready for the dreaded drive to Houston. We hit the road at around 3am and were at MD Anderson by 8:00. Driving at night isn't my favorite activity but it was nice missing all the traffic.. well at least until we hit the city but that's a given. Chris had an appointment for  a CT Scan for his Chest/Abdomen/Pelvis  and he also had to have his PIC line unclogged as I had not been able to flush out one of his lines this past week.  We got out of there at around 2:00. My dear cousin Laurette has taken us in until Wednesday, then she is kicking us to the curb lol not really, Wednesday is when he should be admitted .Tomorrow we have a super early appointment at 6:00 am CT of his sinus and then at 11:20 he has Xrays of his Chest. So seeing it is almost midnight I think I shall part ways with this Blog for now and get ready for a full day of sitting in a waiting room!
Hugs not drugs.. unless it's Chemo :D
Keep the prayers coming and Thank you for reading.
xo
k

Wednesday, August 3, 2011

Ready for Spaghetti

So the last few days Chris has been recovering from his fall, he is feeling a lot better not only his chin but overall. Yesterday he requested  spaghetti for lunch! I think this is the first time he has had any meat in over a month, I happily obliged and whipped some up for him. Today we went out for Chinese, I was nervous bringing him somewhere covered in strangers germs but he wanted to go out to eat, we shared a plate of sweet and sour chicken and it felt so nice doing something that felt normal and didn't involve going to the hospital or taking labs. Speaking of labs we go again tomorrow but this is the last time until we hit MD Anderson so that's a relief !   Oh guess what? The Cancer League of Louisiana called me a couple of days ago and they are sending us a gas card for our next trip to Houston next week, how Awesome is that? Another piece of Awesome news is my friend Mandi's dad is president of a motorcycle club called the Nakatosh Priesthood. They want to do a benefit fundraiser ride for Chris . That is so cool!  I just can't believe the generosity and kindness we have been shown by everyone. It just really an amazing feeling to know how many people care about us, I just feel blessed beyond belief.  Thank you everyone for showing me your all here with me each and every day and  with me every step on this path.

xo
k



I didn't even have to force him to take a picture with me today! ha!